Sunday 26 May 2013

Getting there

Pauline dropped me off early morning on Wednesday 15th for my overnight stay in the Western, I did warn her that she might get a text to pick me up if my blood count was down and they would postpone my chemo but all was fine, I even got a "Well done!", there's been a lot of folk having to delay their treatment but I was full steam ahead. 

No different from last time, loads of fluids first, loads of peeing, and just get on with it.  I was in a room with just one other lady, Carol, she's was quite down when she came in, last time she had chemo she went home with pneumonia and ended up with a hospital stay in her local hospital in Dumfries but after speaking to the Doctor she did perk up, we hit it off and had quite a laugh, even listening to the hospital radio, the nurse laughed at us sitting in bed with our earphones in dancing to "There's a moose loose aboot this hoose!"  It was patient request evening and going by the music selection I think must have been the youngest inmate but they did play Clash of the Ash for me, so all was fine. 

I didn't sleep much, with the fluid bags getting changed through the night and having to get up to go to the loo but I wasn't worried I could catch up with sleep when I got home.  When I left Carol said one of the nicest things, besides the lovely to meet you, we've had a laugh. Her parting words were "I hope I never see you again!"  I replied the same. 

I planned a very quiet weekend, going to the Fling after my last chemo wiped me out for a bit but it was worth it, this time I think my reserves would be a bit lower so I wanted to conserve my strength.  It didn't quite go that way, my cousin contacted me to say my Uncle had had a stroke, Pauline and I went through to Kirkcaldy's Victoria to see him on Friday night, we went along to his house on Saturday afternoon to tidy up, it looked as if there had been a fight, furniture and stuff all over the place, he'd fallen in the kitchen but got himself to the living room where the phone was.  He is my Mother's brother and my Uncle so he does have the fighting genes too.  His speech is ok but his arm isn't, if you have some spare prayers and vibes could you please send them to Brian, you don't know him but you may have seen his face, I think I look like him at the end of 24 hour races.

I felt a bit guilty leaving Pauline to it on Sunday but I was tired and needed to rest, she's already done her fair share of hospital running around and visiting.  On Monday I planned to drive myself over the Western for my radiotherapy but in the morning every time I stood up I went light headed, I was a bit better after my breakfast but I didn't want to drive through, a quick text to Pauline and she'd pick me up no problem.  It was a slow day with delays and we were late back but I rested when I got home.

Tuesday I felt ok , no dizziness so I text Pauline to say I'd be fine to go myself, there are road works on Queensferry Road and it was very slow going, noticed the car temperature going up and up.  Bugger! I pulled over, stuck my hazards on, phone the hospital, they said not to worry, they'll treat me when I get there.  Phoned for a nice RAC man and waited and waited, lucky for me I don't do stress-bunny.   I eventually got to the Western and my treatment, only two hours later!  The nice RAC man said that the fan has seized and I'd get home ok as long as I didn't have to sit in traffic. 

All these things were starting to take its toll and by Wednesday my mouth had gotten very sore and I’m now taking painkillers and another mouthwash which has an anesthetic in it before I eat, I’m not eating too well, in the morning it’s taking me around an hour to get in two Weetabix and a banana, I’m heating the milk too to make it nice and soft after that I’m just having milkshakes, soup, yogurt and ice cream, it’s just too sore to attempt anything else, even a cup of tea is a chore and sore to swallow but I’m still managing to maintain my weight at the minute.  My skin on my neck and face looks sun burnt from the radiotherapy,  it’s itchy and sore where my clothes touch, in the house I’m wearing wide necked t-shirts but outside I have to keep my skin out of the sun, lucky for me I've loads of Buff Scarves.  I thought I should change my name to Rosie Redbeard but Pauline thinks I look more like Bradley Wiggins

I am pleased that I got to half way through the fifth week before things got really tough, just five more radiotherapies to go then things will start to settle down.  They are saying it can take a couple of weeks after the treatment stops before this happens and I’m now thinking that if I’m still in as much pain on the weekend of the Skye Half there is no point going,  but I’m not ruling it out until nearer the time.  If I have to miss it Pauline and I will go another weekend and I’m sure we’ll have a good time and have a run in the Quiraing instead. 

I still have other goals and stuff to look forward to and friends have been very generous and given me goals and offers I’m not going refuse. My head is up and I’m looking ahead, I will get through this.

Hands up, chin down

5 comments:

Anne Wombill said...

I'm sure that if I was in your shoes I would most definitely be at the whinge, whine, moan & groan stage. I am absolutely amazed at how chipper you are- what an inspiration! As you say, not too much more to go through now. Sending positive vibes to you and your uncle. Keep on punching! xx

Helen said...

glad to hear you're still on the winning team Fiona and love to your Uncle. Hang in there Girl! xx

run and be mum said...

What a read - what an inspiration. Keep those gloves on - the fight is going well. No-one promised it would be easy but you seem to be coping amazingly. I really can't wait to meet you!!

Vicky said...

Fiona you are amazing. I wish I had half of your strength of spirit. Keep focusing on those goals, I'm sure you will achieve them. Sending our very best wishes your way xx

Yak Hunter said...

Funny, I think I saw you on Tuesday afternoon on the Queensferry Road - it was a l-o-n-g tailback and I was seeing if I could steer with my knees cos I was bored. I'm sorry it's all getting so sore now. Keep on keeping on - I know you will. Thoughts are with your uncle too.xx